Dr Thato Mosidi
I’ve had XDR TB and received both bedaquiline and linezolid as part of my treatment regimen (while bedaquline was still available for compassionate use).
The aspect of TB Proof that I find truly valuable and that sets us apart from other organisations is the personal experiences that we have had with TB. Most of us have been infected at some point in time and some are still on treatment. The patient centered advocacy that is born from our experiences is unparalleled. Instead of just telling our stories and experiences, I think it has been more useful and effective placing ourselves in strategic groups and affecting policy, e.g. being members of boards with the aim to change policy around TB issues, or getting involved in consultative initiative such as the consultation meetings for the new South African National Strategic Plan.